January 3, 2009 (Part III)
For New Year’s Eve we popped fireworks early for Mia. She was sleeping by 10:00. We saved the rest of the fireworks for her to see on New Years Day when it got dark but she started running fever and had to go the emergency room at Children’s Hospital. She didn’t want to go, she cried and said she didn’t want them to poke her port and stay at the hospital. It broke all of our hearts, big time. Anytime she runs fever of 100.4 Krystal automatically has to call the hospital to let them know she is on the way. They put her on strong antibiotics (in her port) and gave her a blood transfusion. Her ANC went up to 60 but went back down to 0 today. The doctor initially said she may be able to come home after 72 hours. We can only hope and pray. We are not sure what’s going to happen because she was scheduled to go for a overnight treatment on Tuesday and come back every day for the next three days for more treatment. Since all of this has happened we are not sure if they can still do the treatment as planned. Please pray for our little Miss Mia Grace to have the strength to get through this. We love her with all of our hearts, Miss Mina Moo.
Saturday, January 3, 2009
January 3, 2009 (Part II)
We will try to catch up for all the time lost by not posting Mia’s progress sooner. Mia had a good Christmas and loved opening all of her presents. She is spoiled rotten and we love every minute of it. She has been getting really strong chemo drugs lately. It is stronger than her little body has ever had. This phase of her treatment is called Delayed Intensification which last a total of 56 days. She has gone to the hospital every Tuesday for the past three weeks for this treatment. On December 30th she had a break and didn’t need any chemo, but her ANC was 0. We were warned that she will probably lose her hair in the phase of her treatment and they were right. She is losing it. Right now she still has a little hair but you can see her whole scalp through what little hair she has left. We asked her if she wants to cut it off but she doesn’t want to. She says "I want it to fall out by itself." It will break your heart just looking at her, but she is a fighter and is probably stronger than I will ever be. I know she is in remission and we are grateful and thank god everyday but it still breaks our hearts. I am not worried about Mia at home and around family and friends I just don’t want her to experience the pain that the cruel world will inflict on her. The stares and looks from strangers. I don’t want her to feel that!! She wants to go buy some cool hats. That will be nice.
We will try to catch up for all the time lost by not posting Mia’s progress sooner. Mia had a good Christmas and loved opening all of her presents. She is spoiled rotten and we love every minute of it. She has been getting really strong chemo drugs lately. It is stronger than her little body has ever had. This phase of her treatment is called Delayed Intensification which last a total of 56 days. She has gone to the hospital every Tuesday for the past three weeks for this treatment. On December 30th she had a break and didn’t need any chemo, but her ANC was 0. We were warned that she will probably lose her hair in the phase of her treatment and they were right. She is losing it. Right now she still has a little hair but you can see her whole scalp through what little hair she has left. We asked her if she wants to cut it off but she doesn’t want to. She says "I want it to fall out by itself." It will break your heart just looking at her, but she is a fighter and is probably stronger than I will ever be. I know she is in remission and we are grateful and thank god everyday but it still breaks our hearts. I am not worried about Mia at home and around family and friends I just don’t want her to experience the pain that the cruel world will inflict on her. The stares and looks from strangers. I don’t want her to feel that!! She wants to go buy some cool hats. That will be nice.
January 3, 2009 (Part I)
Ok, it’s been so long I wonder where to began. I will try to fill everyone in on what’s been going on in the last few months. On November 1, 2008 there was a fund raiser called Tour De Tammany that benefitted Kid Konnection, St. Tammany reserve deputies, and the Mia Grace Foundation. It was a bide ride on the Tammany Trace in St. Tammany. Mia had a BALL that day! There are so many people to thank. I will start with Richie & Paula Toal and their wonderful family. We can’t began to thank them enough for their time, love, generosity and dedication. They are they type of people you meet and know they are " good people." They wanted to help and they came up with the idea of having a covered tent with all types of goodies: cookies, fudge, brownies, cupcakes, etc. They named it "Mia’s Sweet Shop." They past the word around their hometown of Kenner to other church members and before they knew it they had an outpour of people wanting to donate their baked goods. Richie’s family went all out and even had costumes made of pastry chefs. They were awesome and we can’t thank them enough. Thank you, thank you, thank you!
Missi & Joey Sponiza of the band "Witness" volunteered their time entertaining everyone with Karaoke. We couldn’t believe how much fun Mia was having. Mia and her cousin Chevy even got on the stage with Missi and was singing and dancing. It was the best time we all had in such a long time! We all couldn’t believe Mia was up there in front of everyone like she was a star! LOL! She is our little shining star anyways. Missi you did a great job letting the kids have fun, they loved it. Thank you very much!
Lisa Pratt Maddox is another wonderful person. She is always doing things to help other people. She is a person who is always involved with fund raisers. This event wouldn’t have been possible without Lisa organizing it. Lisa’s sister painted a kids size picnic table of Dora the Explorer for Mia.
There was also a lot of other volunteers for this wonderful event and we would like to thank each and everyone of ya’ll for your generosity. Thank you!
The Time’s Picayune, The Farmer and The St. Tammany News all did a nice write up about the Tour De Tammany with pictures of Missi, Mia & Chevy singing.
Ok, it’s been so long I wonder where to began. I will try to fill everyone in on what’s been going on in the last few months. On November 1, 2008 there was a fund raiser called Tour De Tammany that benefitted Kid Konnection, St. Tammany reserve deputies, and the Mia Grace Foundation. It was a bide ride on the Tammany Trace in St. Tammany. Mia had a BALL that day! There are so many people to thank. I will start with Richie & Paula Toal and their wonderful family. We can’t began to thank them enough for their time, love, generosity and dedication. They are they type of people you meet and know they are " good people." They wanted to help and they came up with the idea of having a covered tent with all types of goodies: cookies, fudge, brownies, cupcakes, etc. They named it "Mia’s Sweet Shop." They past the word around their hometown of Kenner to other church members and before they knew it they had an outpour of people wanting to donate their baked goods. Richie’s family went all out and even had costumes made of pastry chefs. They were awesome and we can’t thank them enough. Thank you, thank you, thank you!
Missi & Joey Sponiza of the band "Witness" volunteered their time entertaining everyone with Karaoke. We couldn’t believe how much fun Mia was having. Mia and her cousin Chevy even got on the stage with Missi and was singing and dancing. It was the best time we all had in such a long time! We all couldn’t believe Mia was up there in front of everyone like she was a star! LOL! She is our little shining star anyways. Missi you did a great job letting the kids have fun, they loved it. Thank you very much!
Lisa Pratt Maddox is another wonderful person. She is always doing things to help other people. She is a person who is always involved with fund raisers. This event wouldn’t have been possible without Lisa organizing it. Lisa’s sister painted a kids size picnic table of Dora the Explorer for Mia.
There was also a lot of other volunteers for this wonderful event and we would like to thank each and everyone of ya’ll for your generosity. Thank you!
The Time’s Picayune, The Farmer and The St. Tammany News all did a nice write up about the Tour De Tammany with pictures of Missi, Mia & Chevy singing.
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